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Ilse Peterson, MPH
Director - Research & Strategy
Overview
Ilse Peterson, DrPH, MPH, is a researcher and strategy consultant who manages initiatives to address scientific, clinical, and public health challenges. With nearly two decades of experience working with life sciences, health care, and tax-exempt organization clients, Ilse provides strategic guidance, program management support, and impact evaluation services to advance her clients’ goals. She has also helped establish and manage multistakeholder collaborations to advance patient-focused medical product development and clinical research conduct as well as and data-driven policy.
Ilse’s research focuses on understanding patient experiences and preferences surrounding their experiences of disease, treatment priorities, and clinical trials. Much of this research is conducted to generate regulatory-grade, fit-for-purpose data that can meaningfully inform drug and device development and evaluation. She frequently conducts research with and for patient organizations, medical product developers, and cross-sector collaborations involving both types of organizations.
Credentials
Education
George Washington University
M.P.H. in Epidemiology (2015)
St. Olaf College
B.A. summa cum laude, Phi Beta Kappa (2009)
Insights & Events
Latest
Insights
Other Perspectives
- Schizophrenia Impacts and Treatment Priorities: Results of An Externally-Led Patient-Focused Drug Development Meeting Survey
Co-author, PubMed, National Library of Medicine, July 2026 - An updated review of the SMA clinical trial landscape in the United States: Findings from analysis of recruitment targets on ClinicalTrials.gov and a survey of SMA clinical trial sites on factors affecting site capacity and readiness
Co-author, PubMed, National Library of Medicine, February 2026 - SMA Community Priorities for Future Drug Therapies: Cross-Sectional Survey Findings Representing 410 Adults with SMA
Co-author, PubMed, National Library of Medicine, May 2025 - Evaluating Perceived Fatigue within an Adult Spinal Muscular Atrophy Population
Co-author, PubMed, National Library of Medicine, October 2023 - Best Practices for Clinical Research Coordinators in SMA
Co-author, Cure SMA, 2019 - The Progressive Multifocal Leukoencephalopathy Consortium as a Model for Advancing Research and Dialogue on Rare Severe Adverse Drug Reactions
First author, Advances in Therapy, 2019 - SMA Clinical Trial Readiness Toolkit
Co-author, Cure SMA, 2018 - T Cell Deficiencies as a Common Risk Factor for Drug Associated Progressive Multifocal Leukoencephalopathy
Co-author, Immunobiology, 2018 - 2nd International Conference on Progressive Multifocal Leukoencephalopathy (PML) 2015: JCV virology, progressive multifocal leukoencephalopathy pathogenesis, diagnosis and risk stratification, and new approaches to prevention and treatment
Co-author, Journal of Neurovirology, 2015 - Inhaler Adherence is Everyone's Responsibility: Conclusions of the IPAC-RS Patient Concordance Initiative
Co-author, Inhalation Magazine, 2013 - An IPAC-RS Update: A Practitioner's Perspective on Human Factors
Co-author, Inhalation Magazine, 2012 - Equivalence considerations for orally inhaled products for local action-ISAM/IPAC-RS European Workshop report
Co-author, Journal of Aerosol Medicine and Pulmonary Drug Delivery, 2012 - A Multidisciplinary Approach to Care for Obstructive Respiratory Conditions: Communication, Coordination and Concordance
Co-author, IPAC-RS, 2012
Leadership & Community
Professional Associations
- American Public Health Association
Civic Activities
- St. Olaf College Alumni Network — Co-chair of Washington, D.C. Chapter, 2016-19
Honors
- Faegre Drinker — Pro Bono Honor Roll, 2020
Awards Methodology
No aspect of these recognitions has been approved by the highest court of any state.
No aspect of these recognitions has been approved by the highest court of any state.